The toolkit is aimed at carers looking after people with YOD both at home and in aged care homes, and was created by the Lovell Foundation in partnership with Edith Cowan University (ECU) and the not-for-profit aged care and retirement village operators Bethanie and Mercy Health.
Younger Onset Dementia usually describes any form of dementia diagnosed in people under the age of 65.
While it’s much less common than dementia occurring after the age of 65, it affects approximately 25,100 across Australia including people in their 50’s, 40’s and even in their 30’s.
The Lovell Foundation was set up by Garry Lovell and his wife Mandy to raise awareness of YOD. Garry, who has the rare inherited form of dementia, tested positive when he was just 37 years old, after his mother passed away from the disease.
Raising awareness of a little-known disease
The e-book features pre- and post-knowledge tests, allowing anyone who completes the book to be credited with professional development.
Bethanie Dementia Consultant Michelle Harris, who consulted on the kit, says the symptoms associated with dementia may be more difficult to accept and manage in a younger person.
“This toolkit aims to improve education and awareness around the disease which will ultimately benefit everyone involved in the care of someone living with YOD,” Ms Harris said.
You can download the kit for free here.
Bethanie is also hosting an hour-long free event for people with dementia, their carers and the community on Friday 28 April at the Christ Church Grammar School, in Claremont, Western Australia.
Called ‘Magic Moments’, the collaboration with Curtin Care and Agelink Theatre will star residents of RiverSea Mosman Park, professional actors and musicians and students of the School and encourage attendees to share their own stories.
Bookings are essential as space is limited and tickets are free through Bethanie on 131 151.