Dementia Action Week: something Australia has every right to be proud of

The Australia Government funds operators to create specalised dementia care units to supports people with very severe behavioural and psychological symptoms of dementia who cannot be cared for in a mainstream residential aged care facility.

There are 23 specialised dementia care units approved in Australia, with the Government committed to funding 35.

With September 16-22 marking Dementia Action Week, the family of a man living with dementia is calling for more specialised dementia care units to help improve individuals’ wellbeing and slow progression of the disease.

Bernie Desormeaux, aged 74, was diagnosed with dementia 10 years ago. From the beginning, his loving family – partner Amelia, daughters Lilly and Olivia, and mother-in-law Mary – struggled to find the support he and the family needed.

 

Bernie with his partner Amelia and daughters Olivia and Lilly several years ago

"It was a difficult journey. Not just the financial constraints and administrative burdens of navigating a very complicated system, but also the emotional toll," said his daughter Lilly.

“Our hearts go out to anyone struggling with the complexity of the system and those without the resources that we luckily accessed.”

After numerous stays in residential aged care homes that didn’t suit Bernie’s needs, his health suffered.

The family contacted Dementia Australia and their recommendation to the award-winning specialised dementia unit, Lady Lourdes House, part of St Bernadette’s Aged Care Residence in Sunshine North, run for-purpose aged and disability services organisation VMCH.

The home is purpose-designed for up to nine residents who experience very severe symptoms of dementia. Residents are offered up to 12 months’ intensive, supportive care to help them manage their symptoms so they can transition into mainstream aged care.

Lady Lourdes is one of only three SDCP’s in Victoria, and only 10 in the country.

Since it opened in 2020, the team has cared for 21 residents and successfully transitioned 11 to its mainstream residence, including Bernie.

“There was a quietening of demeanour, less anxiety; we felt he relaxed,” says Amelia.

“Physically he improved, putting on weight. The relationships staff build with the families, the gentleness and empathy that they show to the residents and to us, is just extraordinary.”

VMCH Lady Lourdes Unit Coordinator Sue Adhikari says staff are highly trained and have ongoing education with Dementia Training Australia.

“We utilise non-pharmacological interventions as a first line of action and work on minimising people’s triggers to help manage behavioral and psychological symptoms of dementia. Ultimately, our success lies in giving residents time and maintaining a consistent approach with a familiar face. We provide them with person-centered care and treat everybody as unique individuals.”

What a great initiative.

 

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A special thanks to our contributors

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Caroline Egan

DCM Media, agedcare101

Caroline has a wealth of experience writing within the retirement and aged care sector and is a contributing journalist for the Villages.com.au and agedcare101 blog and accompanying newsletters.

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Ian Horswill

Journalist

Ian is a journalist, writer and sub-editor for the aged care sector, working at The DCM Group. He writes for The Weekly Source, agedcare101, villages.com.au and the DCM Institute fortnightly newsletter Friday. Ian is in daily contact with CEOs of retirement living, land lease and the aged care operations and makes a new contact every week. He investigates media releases, LinkedIn and Facebook for a good source for ideas for stories.

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Lauren Broomham

Retirement and Aged Care Journalist

Lauren is a journalist for villages.com.au, agedcare101 and The Donaldson Sisters. Growing up in a big family in small town communities, she has always had a love for the written word, joining her local library at the age of six months. With over eight years' experience in writing and editing, she is a keen follower of news and current affairs with a nose for a good story.

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Jill Donaldson

Physiotherapist

Jill has been practicing as a clinical physiotherapist for 30 years. For the last 13 years she has worked solely in the Aged Care sector in more than 50 metropolitan and regional facilities. Jill has also toured care facilities in the US and Africa and is a passionate advocate for both the residents in aged care and the staff who care for them. She researches and writes for DCM Media.

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Chris Baynes

DCM Media, agedcare101

Chris has been a journalist and publisher in the retirement village and aged care sectors for 11 years. He has visited over 250 retirement villages and 50 aged care facilities both within Australia and internationally. Chris is a regular speaker at industry conferences plus is a frequent radio commentator.

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Annie Donaldson

Nurse and Carer

Annie has a long career in both nursing and the media. She has planned and co-ordinated the medical support from both international TV productions and major stadium events. In recent years she has been a primary family carer plus involved in structured carer support.